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This is a patient-to-patient support community covering questions and providing support regarding
Autoimmune disorders such as:
Addison's disease,
Autoimmune hepatitis,
Celiac disease,
Crohn's disease,
Goodpasture syndrome,
Graves' disease,
Guillain-Barre syndrome (GBS),
Hashimoto's disease,
Kawasaki's Disease,
Lupus erythematosus,
Myasthenia gravis,
Takayasu's arteritis, and
Temporal arteritis.
I guess what I am saying is that your lab values can change and you can still have one of these autoimmune diseases even though the labwork is negative at any given time. Did they run the scleroderma test? I would just find a good rheumatologist and keep trying to find an answer. Sorry I couldn't help much. Good luck.
This may not be so in your case but with the relevent tests, the powers that be will diagnose you accordingly. Its just that many of the auto immune symptoms display so many of the same or similar charactoristics.
After a major flare up and finding that I also had a positive AMA, it was found that I also have auto immune hepititis which is quite advances. This was a complete surprise but I must say that after being given the appropriate meds for this condition, I have not only stabilised but have also been feeling a whole lot better for now.
No one knows how long this will last but the consultants are vigilant and once they are on your case, they will endeavour to crack it!!!
One piece of advise though, it would not hurt to keep a diary of events stating how you are feeling that day, aches, dry eyes, itching, night sweats, nausea, any thing at all. This information is very helpful to the consultant.