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Migraines & Headaches Community

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Lifetime of Headaches

by NuttyNicole, Nov 07, 2008 02:09PM
I am 33 years old and have been getting headaches since childhood. I get the typical migraines with aura in the front of my head, which I am able to treat successfully and do not happen often.  However, I get excruciating pressure headaches in the back of my head and in my neck. They seem to be deep under my skull and feel like my spinal cord is being smashed and every step I take makes it worse.  The more I move during the day, the worse they get and very little seems to relieve them, other than hours of sleep and not moving.  It makes life miserable and sadly, the world thinks I am crazy!  Is there anyone who has this type of problem or am I the only one who has these headaches?  All I am told is that I need to relax and exercise, but movement makes them worse.
Member Comments (18)

by tomsant, Nov 08, 2008 11:37AM
To: NuttyNicole
33 yo M, having 'migraine with aural' from childhood.

Now, 'excruciating pressure headache in the back of head and neck': How long? What do you think caused it? Is it after a fall, or such trauma? Since movement makes it worse, and 'immobility' relieves it, the least one considers 'cervicogenic headache' (Headache caused by problems in the backbone of the neck, its various constituents)

(What constitutes your 'world' who thinks you are crazy?)

You have to meet a neuro.

Best rgds,

Thomas Antony

by hava, Nov 09, 2008 05:22AM
To: NuttyNicole
You cannot exercise, but you should be able to these breathing exercises.Do it gently and come back to post your progress in 3 weeks.It be beneficial.Build up your timing gradually.If you feel tired or dizzy, stop and resume later.
Anulom Vilom -  Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 15 to 30  minutes twice a day(maximum 60 minutes in one day).
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep breaths into the lungs.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 15 times

by NuttyNicole, Nov 09, 2008 02:48PM
To: tomsant
Thank you for the information.  I have seen many neurologists in my lifetime and none of them want to focus on the structure of my neck.  I had 3 severe neck and head trauma aaccidents as a child, but the doctors don't like to be told what to investigate.  I get little help from any of them.

NuttyNicole

by tomsant, Nov 10, 2008 07:56AM
To: NuttyNicole

Yeah, what to do! We are touchy most of the time :-) Especially when we are told what to do ! ;-)

Try suggesting politely; that you found something called 'cervicogenic headache' in the net and could yours be this?

In fact, the entity of 'cervicogenic headache' is a 'comparatively' new one and there is still some debate going on about the same. You will find that many neurologists are not enchanted by anything that happens outside the skull.

You may be able to google the term, or 'cervicogenic headache society' and find out if there are any specialists on it in your area. Sometimes it is not easy to diagnose too.

In the meanwhile, try to hold your head steady in the position there is no pain, while sitting, walking or lying down.

Best of luck!

Rgds,

Thomas Antony

by NuttyNicole, Nov 11, 2008 07:04AM
To: tomsant
I went to the doctor yesterday. I started with just a general practitioner hoping that they could point me in the right direction.  I had a diary of my headaches, as well as a written history of my past.  I had all of my diagnosed problems, complete with researched information and how they affect my life, I also had information as to what I think could possibly be wrong with me with hopes of someone wanting to look into it.

I went in and spoke with the doctor and when he asked why I was there, I told him I was simply there for advice. I explained my history, the doctors I have seen, the tests that have been run, and how it is affecting my life.  He then looked at me and said, "You have been to other doctors so what am I supposed to do?" I responded very calmly that I was hoping that maybe he could lead me in the right direction.  I showed him the research that I had found concerning the headaches you had mentioned.  I told him that it had never been investigated and I wasn't sure what type of doctor I should go to for something like that.  He then said, "well, you have been to a headache doctor and if she couldn't help you, then there isn't much that can be done."  I then prodeded to explain that this same doctor found a hemangioma on my vertebrate and told me not to worry about it, but after doing research, found it is something that should be looked at more closely.  He looked at me like I was a fool.

He finally agreed to set me up with an orthopedic specialist, but I was so upset by his demeanor and the treatment that I get, that I am about to give up.  I have always lived in very rural areas, so good healthcare is hard to find.  To get to major health centers, I have to travel, and I can't afford to miss work and stay close to health centers for the help that I need. I wish I  could just check myself into a hospital and refuse to leave until they find me some help because I am at the end of my rope.

These headaches get more severe all of the time.  Medications are working less and less. It has destroyed my marriage, friendships, and my job is suffering. I honestly don't know what else to do.

by tomsant, Nov 11, 2008 09:22AM
To: NuttyNicole
This is so sad. I am at a loss how to advise you. You approached him politely but he was arrogant? (You may have to ask a psychologist! Do you have a 'villain's face? Or your body language was not right?? :-)

I imagine you are in the western hemisphere, or some place where there are doctors at least.  I can assure you that no doctor knows everything. A GP is supposed to know something about everything, and the specialist is expected to know everything in his field; and with the present knowledge explosion, I wonder how many can live up to these expectations.  The human brain is not adequate enough.

I don't believe major health centers will make any difference. It is the attitude and the dedication of the concerned doctor who can, to say the least, guide you. While you may consider the doctor as rude, he may have a different story to tell. How a patient already evaluated in detail by a specialist could come back to him when he was already tired and with enough work at hand, with exaggerated complaints and tons of nonsense from the net :-)

Anyway, you go to the ortho, and let us see what he finds out. If you feel you're back to square one, why don't you upload your 'dairy' to some site and leave the link here. I will try to read at leisure and get back to you.

Let us try if we can attempt to sort it out.

Best,

TA

by NuttyNicole, Nov 11, 2008 01:21PM
To: tomsant
Thank you so much for your encouragement.  I don't think I have a villian's face and I am considered very approachable and personable.  Being a teacher though, I know that there are times when we dont' always handle situations correctly because it is "one of those days."  I will continue to follow up with anyone that I can find.  I just hate the way my life is being led....being in bed, or at least laying immobile by early evening every night is not the way I want to spend my life!