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Autoimmune Disorders Community
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Just Diagnosed
by Barb249, Nov 08, 2008 11:53AM
I was just diagnosed with Sjogren's syndrome. I did not ask many questions at the Doctors office and now I have so many. He has me on prednasone and Plaquenil. I understand that it will take 6-8 weeks before I see a differnece will this help with my energy level? Can anyone tell me, will I continue to get worse with this problem or will the medication help me to go back to a normal life? I'm very confused at this point. I not only have dry eyes, nose, mouth but during an onset I also develope terrible Brain Fog, short term memory loss, terrible pain in the mid section, I have always had back problems. At first I was just happy they knew what was wrong. I was told that it could be treated with medication but now I'm starting to worry and find myself on the computer all the time trying to dig up information. I get contridicting reports form severl articles that I have read so I was in hopes that someone that has this could help set me straight. Thank you for your help.
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Hi ! My mother has Sjogren's Syndrome and she was on Plaquenil. She was told that it could take several months before she would feel better and she hasn't noticed any improvement. She decided to try a pathogen killing treatment that is successfully treating many chronically ill patients, including those with autoimmune diseases, and she thinks she's having success with that. I'm also on the same treatment for Chronic Fatigue Syndrome. You might want to discuss this with your physician. If you are interested, I can certainly post some links for you.
Best,
PlateletGal
Good luck to you and if I can answer any questions as a long time sufferer please let me know.
Erin
Plaquenil can take months to fully kick in, but in the meanwhile the Prednisone should be helping you. If you are not feeling any better, please call your doctor.
Also, your doctor can give you an Rx to help relieve the dry mouth/eyes symptoms as well.
Hope you feel better soon,
Wanna :o)